Support groups are a platform for people going through similar hurdles and concerns in life to get together and share. Their purpose is multifold—exchanging information, sharing experiences and learnings, providing a counsel, lending support and understanding.
On 6th June 2017, Samvedna Senior Care Foundation conducted a workshop on Intergenerational Bonding at the summer camp organized by Desire Society, Gurgaon, www.desiresociety.org. Desire Society is an NGO supporting HIV infected or affected children all over India.
Dementia is a chronic disease. This means that current medication and therapies cannot cure it, only control it to a certain degree. For a loved one of a person with dementia, accepting and coping with this realization, isn’t easy. The spouse of the person with dementia is often the primary caregiver. The nature of the disease is such that the dynamics of the relationship change from being romantic to caregiving.
Telling a person with dementia that someone they love has passed away can be a very emotionally draining task. The person may have to be told again and again, may still be shocked and may mourn the loss seemingly for the first time, more than once.
“I have lived in Siachin for 5 years while I was posted there, everything there is so different from here.” “Jawahar Lal Nehru came to see the play I was performing in and compared it with one such play in London!” – These are just some examples of the experiences that we get to hear of when we spend time with an elderly. Elderly have a treasure of memories and experiences that they wait to share with others.
“Can dementia can be reversed with medicines”
“Will the memory loss progress”
We’ve met caregiver families from diverse backgrounds. The one thing that remains consistent across all these people is the presence of myths, which may come in way of understanding and planning for the loved ones affected by the disease.
“When I started my entrepreneurial journey in 2013, I started with a vision of creating an organization which would provide community and home services for senior citizens. I was looking for someone to help guide me through the various steps.
So, what are thoughts? According to many participants, thoughts are little conversations in our head, are our opinions, they can be difficult to deal with, and many participants also commented on how thoughts seem to just barge into our mind and one should try not think too much.
As society has changed and evolved, so have the family ties changed over time. All families are different, and therefore different families interact in different ways. Some families are close-knit, and have frequent contact with each other and give importance to providing care as it becomes necessary for aging loved ones. Other families may feel simply an obligatory sense of duty when it comes to caring for each other, but may not share the same emotional bond.
Illness of any kind always has an impact on family members. This specially holds true for dementia. The effects it has on the children and spouse of the person affected is often discussed and researched about. However, there’s always a ripple effect that is not limited to the immediate family members. It also passes on to the tiny tots of the family: the grandchildren.